Perhaps I am not best placed to answer these questions myself. As a long-time political activist I am perhaps too impatient to move towards an activism which may be beyond the capacity of many carers, particularly given the day-to-day situation in which they struggle to survive.
I doubt if it is any coincidence that 24/7 carers, such as myself, whilst probably having the least spare time, are among the most conscious of the disempowerment of their situation. They experience caring in its most oppressive form.
Carers' organisations vary from the bland, but sometimes useful, charities, which serve to provide tea and sympathy, information and advice, as well as a degree of social control, which is most instrumental for government, to the carer-led organisations. These latter vary in their idiosyncrasy, but are generally not very democratically accountable to their members. They are rather, vanity groups, led by ersatz charismatic personalities, whilst being more representative of carers than charities, most of them are still in a state of infantile disorder. I jest, of course I do. How could you possibly imagine anything else ! I think that Carer Watch, so far, has come closest to a democratic ideal, but it still has some way to go, in my opinion.
I imagine a fully democratic mutual carers' movement whose leadership is elected and accountable. Yes, and dismissable. Such a movement could embrace the campaign for a Carers' Charter, the campaign for a Carers' Trade Union and the Campaign for a Carers' Wage.
Speed the day !